A friend accompanies him to the doctor, who sends him to hospital for screening.
In the end, the news is good. The lump isn't cancer.
Carl Safina's book "Beyond words" is an excellent summary of recent research
In Jenny Speaks Out, a girl reluctantly discloses to friends how her father has abused her in the past. But the pictures use expressions, body language and colours to spell out clear, unambiguous messages.
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A throbbing lump is shown with red strokes all round it; terrible anger is portrayed with a jagged purple aura. Each book is carefully devised and road-tested.
Förlag - Atria Books/Beyond Words - Storytel
As a result, an artist may have to redraw something a dozen times, and each book costs pound;35, to produce, with the funding coming from a variety of sources, depending on the individual subject. The pictures share information but they also illustrate emotions relevant to the topic or experience. Sheila Hollins, Beth Webb and Lester Sireling created and devised the first Books Beyond Words in after realising that many people have better visual than verbal literacy - not just people with intellectual disabilities.
Since earliest times pictures have been used to communicate. This series now includes some 30 titles covering such diverse subjects as epilepsy, abuse, bereavement, depression, making friends, going into hospital, falling in love. A vital part of the development of each book is the involvement of people who have intellectual disabilities. They monitor the pictures, interpret their meaning and, when necessary, ask for changes to be made until they are satisfied that the illustrations will be clearly understood by future readers.
A supporting text is provided at the back of each book, giving one interpretation of what is taking place. Guidelines are also provided for carers, supporters and professionals, including notes on how to use the book together with useful resources and organisations that may help with particular problems. The Guidelines may include a glossary of special terms.
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These scenarios show the doctor and nurse using the book to explain what they are going to do. The pictures show how she talks to her supporter and is helped by her to establish some friendships. We see him having a seizure, going to the doctor, having a brain scan, an EEG, a blood test, and taking daily medication.
There are examples of activities that people with epilepsy need to be careful about, such as drinking alcohol and swimming alone.
The book shows that it is possible to enjoy an active and independent life with epilepsy:. It is the story of a man who does not keep himself clean and does not understand why people seem to avoid him. He often feels lonely and unhappy. In the UK, just 5. What does she think of the state of support for people with learning disabilities and autism today? Professionals should understand that what people need to live their life is to belong [in communities], she states.
Communicating beyond words
But she is all too aware that progress is slow. The latest scandal came eight years after a government promise to shut institutions such as Whorlton Hall and move people back to communities following similar abuse exposed by Panorama at Winterbourne View near Bristol. And the latest NHS-commissioned review of mortality rates , published last month, finds that people with learning disabilities are disproportionately likely to die in hospital.
A lot more needs to be done to tackle the lack of parity in healthcare for learning disabled people, says Hollins. Since then, Hollins says attitudes have improved, not least because more people live in communities.